Update from Amber:
"Yesterday's trip went really well, especially compared to last week. He was so brave! When we got to the parking garage at Primary's, he said, "I don't want to go in there. " Luckily his numbers were all good, so no transfusions this week!!!! YAY:). That made it so our time spent at the clinic was not very long at all. Reiss, and mom and dad were VERY happy about that!
Reiss' ANC ( infection fighting cells) is really low (100). So we have to be extra careful. If he gets a fever at all we will be admitted into the hospital. We also found out today, at this point in his treatment, the doctors expect there to be less than 1.0 percent of leukemia in his blood cells. If it is higher then that, then they consider him high risk. Well, Reiss is at 1.1 percent (that dang .1 percent!). So, they are planning on treating him a little more aggressive for longer then first planed. We will know more about his road map to treatments after our appointment on Mar. 11, when they do another bone marrow biopsy.
Thanks to our connections (Uncle Landan) we were able to stop at Olive Garden and eat lunch. Landan had us in the back, in a secluded room, and he sanitized everything before we got there. It was so nice not having to eat more fast food /drive thru food on the way home!"
Uncle Landan, and Reiss, at Olive Garden. Handsome Boys! |
I'm happy to hear the trip was relatively short, and that Reiss didn't need transfusions! I am cursing that .1 percent, too! Darn it!
ReplyDeleteYay for yummy food and a clean environment! We'll be praying that Reiss doesn't get any infections or fevers. There isn't a minute that goes by that your family isn't in our thoughts and prayers. We love you all!
P.S. Every time Grayson sees the picture of Reiss in the blog header, he says, "Grayson?", I tell him, "No, that is Reiss". Then he says, "Reeeeeeiiiisssssss". Too cute! I told you they could be brothers. ;)
ReplyDeletePlease tell Amber and her family we are praying for them. Thank you for doing this blog so we know how things are going.
ReplyDeleteKatie DiStefano Young