Yesterday ended up being a ROUGH day! :( He woke up at 5 am wanting ham sandwich, salami, cheese and chips. He then went back to bed. He got back up at 10 am and wanted pancakes. While eating pancakes he wanted mac and cheese and hot dogs.....
This is the period he starts to gain weight because the steroid makes him hungry hungry!
Hungry boy! You can see his little face filling out. |
Happy one minute, and sad the next :(
This next picture just breaks my heart. This is the text I got from Amber last night:
"It has been a very rough day!! Reiss has been in a lot of pain. He can't walk, and if I try to get him just to stand, he cries :( They said the steroids would make his joints ache, but I didn't realize it would be this bad. It breaks my heart to see him hurt so bad. His stomach is still huge (bloated) from being constipated so he is also very uncomfortable from that. He cries to me that his body hurts, and this is even with being on pain meds! On a positive note.... his appetite is still enormous!!!"
Looking so sad and miserable. Heartbreaking. |
Please continue to keep this little guy and his family in your prayers. I can't even imagine how heartbreaking it must be to see this little boy so sick. :( Kenny had to go back to work yesterday and will be gone until late Sunday night. So, Amber is on her own trying to care for, and comfort, her baby boy. As well as, be a mom to her other two. She could use prayers as well. I'm sure of it!
I hope and pray today is better and that our Reissy boy (and his mom) will get some relief and rest.
Please give Amber and all of their family my love and please let me know how I can help. Is anyone there helping Amber? I could go shopping, do laundry, bring meals, whatever she needs. Please let me know. My prayers are with this precious little family.
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