Today was a good day! Pretty low key and quiet. Reiss was not hooked up to anything (pulse ox, chemo, etc) so he was free to move around the room. Many hours were spent in front of the window watching the construction site across the street. Cranes, backhoes, track hoes, bob cats.
A dream come true for this tractor loving boy!
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| Watching tractors and cranes with dad |
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| Look at those MUSCLES!!! |
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| Happiness |
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| Amiah age 7, Tayger age 4 |
Granny, Nana and Zack stopped in for a visit. He sure does love his Granny!
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| There's not much in this world that is better than Granny! |
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| Grateful for family! |
The family support person (not sure the correct title) made a sweet little book for Reiss to take home for his brother and sister. Amber read it too me and it made me cry. Such a sweet and simple explanation of what their little brother is going to go through, and what Leukemia is.
News/Tidbits/Info:
The discharge nurse came in today and they are going home TOMORROW (Wednesday)!!!! They are antsy and ready to be home! So after a chemo treatment in the morning they should be on their way out of there! The good thing about ALL is that most of the chemo can be done as outpatient. They will return to the clinic on Mondays, and as long as counts and things are good he should be able to go home. This is wonderful news.
Another blessing today was finding out that Amber's good friend, Melissa Nielson (sp?) is going to be his home health nurse. I am so happy about this and I know Amber and Kenny are too! It will be good for Reiss to see her familiar face! She will come twice a week for blood draws and will be available for any questions Amber and Kenny might have.
An interesting thing Amber told me was that they have to be very careful when changing his diaper or coming in contact with his bodily fluids. While getting chemo, and 48 hours after finishing it, they must wear gloves during diaper changes, and if he leaks out of his diaper it is very important to remove the soiled clothing and rinse your skin with soap and water. It breaks my heart that this toxic chemical is being pushed through his little body, Yet it is harmful for the caregiver to even come in contact with it. Thank goodness for modern medicine though. We want our boy BETTER!
Reiss won't be able to go out much when he gets home. They need to limit his exposure to germs and large crowds. No church, no stores, no places with lots of children or lots of people. Being around his siblings is, of course, just fine...they still have to live their life!
Amber and Kenny seem good. She sounded great and they seem comforted and positive. The initial horror of his diagnosis has diminished a little, and they are ready to start this fight. Fight, Reiss, FIGHT!
Finally, MY favorite part of my day was face-timing with Reiss! Why didn't I think of that sooner? It did my heart good to see his playful smile, have him proudly show me his owies, and make my kids giggle with his new "fart trick" with his oxygen. This little guy is amazing.
He is going to kick Leukemia to the curb! There is no doubt in my mind.
Such GREAT updates and WONDERFUL news!!! We would LOVE to be able to visit with them personally but this is the next best thing!! Thank you for your time and effort in doing this Erin...it means a lot to MANY people!!! Everyone is cheering little Reiss on and also his family!!! We LOVE them all!!!:)
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